Rare Diseases Support, Resources & Help | NORD
Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific …
NORD Rare Disease Videos | Informational Videos About Rare …
The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public. NORD works with medical experts and …
Rare Disease Research Grant Program | NORD
Explore NORD's research funding opportunities and submit innovative proposals advancing rare disease understanding, treatment, and potential breakthrough discoveries.
Sotos Syndrome - Symptoms, Causes, Treatment | NORD
May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Resources - National Organization for Rare Disorders
May 12, 2025 · Resources Archive - National Organization for Rare DisordersThe National Organization for Rare Disorders (NORD®) hosted this webinar for advocates interested in …
What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …
Rare Disease News - National Organization for Rare Disorders
Dec 18, 2025 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.
Patient Assistance Programs - National Organization for Rare …
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …
Patient Organizations - National Organization for Rare Disorders
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.
Contact Us - National Organization for Rare Disorders
Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email …